Anne’s ME/CFS Journey

Written two months after the Energy Excellence Course.

Dear Amir,

I’m very happy to be able to share my recovery story (so far!). It’s just amazing to think that after 12 years of being completely housebound with ME and not imagining I’d ever be very much better, I am now living a very different life, and going out 2 or 3 times every day!

The beginning of change was a year ago, when I realised how stuck I had become. After a stay at a private hospital, I started learning NLP techniques from a DVD course. Over several months, I started going out again once or twice a week and built up my walking ability to a couple of minutes. This was a huge improvement, but I’d become aware that anxiety was playing a much bigger role in my illness than I’d previously thought. However, what I’d learnt made me confident that your approach would work for me… and it has, better than I even hoped!

When I came to your course 2 months ago, I was still going to bed for 20 mins after every 40 mins sitting up. Having my shower and hair wash once a week, even with help, was still leaving me exhausted for the rest of the day.

“By the time I got back home after the Energy Excellence Course I was staying up for hours at a time, and now I just have one short rest in the afternoon and one in the evening.”

By the time I got back home after the Energy Excellence Course I was staying up for hours at a time, and now I just have one short rest in the afternoon and one in the evening. I am now managing myself for personal care, and have a shower and hair wash every day.

Soon after coming back I found myself able to walk properly again, rather than halting every few metres. I can walk half a mile now, and the time my dad took me for a walk in the mountains was just amazing!! I know that the recovery will continue, especially as I build up my physical strength.

I really enjoyed my time on the course, the hotel was lovely and the staff helpful. The other participants were great, all very positive and we got on so well together. A highlight for me was after the last session when several of us went by taxi to the beach, and I was actually walking on the beach in bare feet whilst the others waved me on from the café. It was a very long time since I’d done anything like that!

I don’t know how to thank you for all I’ve got out of your Energy Excellence Course… but there is a card on its way in the post and I hope you can use my story to encourage others who have been severely affected with ME for a long time.